Mar 18, 2024
We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study.
Chiquita and Earl will discuss how they discovered the TEAAMS study, what motivated them to get involved, what their experience as study participants was like, and what the results of the study were for them.
We'll also take you to Capitol Hill as we share conversations that we had during Hill Day at the National MS Society's Public Policy Conference.
It's MS Awareness Month, and we're sharing new videos that feature interviews with leading MS experts along with the thoughts and reactions of people living with MS.
And we'll tell you where you can catch the video replay of the International Progressive MS Alliance's webcast on emerging treatments for progressive MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
Tomorrow! The ACTRIMS Post-Forum Patient-Centered Webinar :22
This Week: The patient perspective on participating in an MS research study 1:38
Live! From the Natinal MS Society's Public Policy Conference 2:28
People with MS weign in on the impact of several ECTRIMS presentations 10:17
Catch the video replay of the International Progressive MS Alliance webcast 11:35
Chiquita Shepard-Knight and Earl Sneed discuss their experience participating in the TEAAMS study 12:11
Share this episode 27:18
Have you downloaded the free RealTalk MS app? 27:38
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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jon@realtalkms.com
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
REGISTER: ACTRIMS Post-Forum Patient-Centered
Webinar
https://fs2.formsite.com/1FItkk/tgx8tu3xg0/index
VIDEO: Dr. Jiwon Oh shares encouraging results from an
extension study of Tolebrutinib, an investigational
disease-modifying therapy. Then, two people living with MS share
their thoughts about clinical trials and a precision medicine
approach to treating MS
https://youtu.be/eWoZLF4bZmo
VIDEO: Dr. Anthony Feinstein discusses the outcome of
the CogEx study, Then, two people living with MS share their
thoughts about the impact of this study
https://www.youtube.com/watch?v=UtGtCnNkYOY
VIDEO: Dr. Annette Langer-Gould discusses the impact of
other health conditions on people living with MS. Then, two people
living with MS share their thoughts and experiences of
managing their MS along with additional health conditions
https://www.youtube.com/watch?v=J83jlqMbsZo
VIDEO: Dr. Daniel Ontaneda discusses how artificial
intelligence will impact MS treatment. Then, two people living with
MS share their thoughts on the potential impact of AI on MS
treatment and the future patient experience
https://www.youtube.com/watch?v=_fRLW69Xc1A
VIDEO: Dr. Robert Motl discusses the benefits of
exercise for people living with MS. Then, two people living with MS
share their thoughts on how exercise has impacted their MS
journey
https://www.youtube.com/watch?v=oZDdp8JumFg
VIDEO: International Progressive MS Alliance Webcast
Replay: Emerging Treatments for Progressive MS
https://www.youtube.com/watch?v=W4hxtl38MBQ
The TEAAMS Study
https://projectteaams.ahs.uic.edu
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RealTalk MS Episode
342
Guests: Chiquita
Shepard-Knight and Earl Sneed