Episode 64: Patient-Driven MS Drug Development with Laura Kolaczkowski

Nov 13, 2018

Patient-centered research is based on an understanding that patients themselves have unique perspectives that can help to mold, change, and improve the work of finding answers to clinical questions. My guest on the podcast is Laura Kolaczkowski, the co-Principal Investigator for iConquerMS. We're talking about the impact this people-powered research network is having on MS research, and how the first ever patient-driven MS drug development project came about.

  

 

We'll also help you wade through the information and misinformation that surrounds whether people with MS should get a flu shot this season. We'll tell you about a study that demonstrates how ballet exercise can help improve balance and motor control for people living with MS, why a new and more powerful MRI scanner is good news for the MS community, a new smartphone-based study that you can be a part of, and a newly-released video manifesto that you have to see!

 

We have a lot to talk about! Are you ready for RealTalk MS?!

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MS & Flu Shots  5:14

Study: Ballet Exercise Improves Balance & Motor Control in People Living with MS  8:05

Genentech Launches Floodlight Open  11:22

FDA Approves More Powerful MRI for Clinical Use  13:33

National MS Society Releases We Believe, a Video Manifesto  15:41

My Interview with Laura Kolaczkowski   17:06 

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LINKS
If your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

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STUDY: Targeted Ballet Program Mitigates Ataxia and Improves Balance in Females with Mild-to-Moderate Multiple Sclerosis

Floodlight Open

VIDEO: We Believe

iConquerMS

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RealTalk MS Episode 64
Hosted By: Jon Strum
Guest: Laura Kolaczkowski

Tags: MS, MultipleSclerosis, MSActivist, iConquerMS, MSsociety,  RealTalkMS